Building a Self-Care Routine When You Live With Chronic Pain
Let me be real with you. When I see those social media posts about self-care — the bubble baths, the face masks, the perfectly curated morning routines — I sometimes want to scream. Because when you're living with chronic pain from endometriosis, self-care doesn't look like that. It doesn't look glamorous. Some days, self-care is just surviving. And that needs to be OKAY.
After 8 surgeries and over a decade of living with Stage 4 endometriosis, I've had to completely redefine what self-care means to me. It's not about pampering. It's about protecting my body, my energy, and my mental health so that I can keep going. Because this disease? It will take EVERYTHING from you if you let it.
What Self-Care With Chronic Pain Really Looks Like
Self-care with chronic pain starts with one thing: honesty. Being honest with yourself about how you're really feeling. Not pushing through when your body is begging you to stop. Not pretending you're fine when you're not.
Here's what my self-care routine actually looks like on different types of days:
On good days:
- I wake up and do some gentle stretching before getting out of bed
- I eat a nourishing, anti-inflammatory breakfast (usually a smoothie or oatmeal)
- I move my body — a walk, some yoga, whatever feels right
- I prep meals for the harder days I know are coming
- I connect with people who understand — whether that's online or in person
On bad days:
- I let myself rest WITHOUT guilt
- I use my heating pad (my best friend, honestly)
- I stay hydrated, even if eating feels impossible
- I do my breathing exercises to manage the pain
- I remind myself that this flare WILL pass
Do you see the difference? Self-care with chronic pain isn't one-size-fits-all. It changes day by day, sometimes hour by hour. And BOTH of those lists? They count. Resting IS self-care. Saying no IS self-care. Crying IS self-care.
Building Your Own Self-Care With Chronic Pain Routine
Here's what I've learned about creating a routine that actually sticks when you have endometriosis:
1. Make it flexible. Rigid routines and chronic pain don't mix. Build a routine that has a "good day" version and a "bad day" version. That way, you're never failing — you're just adjusting.
2. Prioritize sleep. I cannot stress this enough. When I don't sleep well, everything is worse. My pain is higher, my mood is lower, my patience is gone. Protecting my sleep is the most important self-care I do.
3. Nourish your body. I'm not talking about strict diets. I'm talking about feeding yourself foods that reduce inflammation and give you energy. On bad days, even having a pre-made soup in the fridge counts as a win.
4. Protect your energy. This one changed my life. I started treating my energy like a bank account. Every activity costs something. Some things — toxic people, overcommitting, ignoring my limits — cost WAY too much. I stopped spending my energy on things that don't fill me up.
5. Ask for help. I know, I know. This one is hard. Growing up in St. Croix, I was raised to be strong, to handle things. But asking for help isn't weakness. It's wisdom. Whether it's having someone cook for you, drive you to an appointment, or just sit with you during a bad flare — LET PEOPLE IN.
You Deserve to Take Care of Yourself
I want you to hear this: you are not lazy. You are not dramatic. You are not "too much." You are a person fighting a serious disease every single day, and you deserve care — from your doctors, from the people around you, and from YOURSELF.
Building a self-care routine when you live with chronic pain isn't about perfection. It's about showing up for yourself, even in small ways. Especially in small ways.
What does self-care look like for you? I'd love to hear about your routine. Send me a message and let's inspire each other. We're all in this together, and we are STRONGER than endometriosis!!!
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